I hope you don't mind me asking a few questions. I've read through this a couple of times, but I'm still having a bit of trouble understanding the implications and how we should use this information.
Is it suggesting that there might be multiple types of HEDS now?
Are there symptoms mentioned that aren’t part of the current diagnostic criteria but should be considered?
Do the clusters help explain the genetic results or other possible causes?
As a patient, should I be looking to figure out which cluster I might fall into (if that's even the point)?
Great work and thanks for sharing. Interesting expressions in the 3 clusters. Looking forward to more studies like this as we await the genetic results. Hope you're having a good weekend.
Are these clusters going to get names or remain as such? I really wonder about cluster 3, where my daughter fits, bc of chiari & tethered cord and other comorbids- whether there's a unique genetic difference or just how hypermobility is expressed in that cluster.
I hope you don't mind me asking a few questions. I've read through this a couple of times, but I'm still having a bit of trouble understanding the implications and how we should use this information.
Is it suggesting that there might be multiple types of HEDS now?
Are there symptoms mentioned that aren’t part of the current diagnostic criteria but should be considered?
Do the clusters help explain the genetic results or other possible causes?
As a patient, should I be looking to figure out which cluster I might fall into (if that's even the point)?
Great work and thanks for sharing. Interesting expressions in the 3 clusters. Looking forward to more studies like this as we await the genetic results. Hope you're having a good weekend.
Are these clusters going to get names or remain as such? I really wonder about cluster 3, where my daughter fits, bc of chiari & tethered cord and other comorbids- whether there's a unique genetic difference or just how hypermobility is expressed in that cluster.
Thank you, Cortney!