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The Real Cost of Chronic Illness
It's a lot more than just medical bills
Jul 21
34
11
11
We Can Measure Almost Everything Now. So Why Can't My Doctor Tell Me What's Normal?
Wellness tech is becoming the infrastructure medicine failed to build
Jul 11
21
12
3
Addressing one of the biggest debates in the EDS space
Are hEDS and HSD the same or different?
Jun 24
21
4
3
Leaving Academia, Not Leaving the Work
I thought leaving academia meant leaving the field. It didn’t.
Jun 5
62
8
7
Is EDS Awareness Month Still Doing What We Think It Is?
I think we owe it to ourselves to ask harder questions
Jun 2
61
23
11
I Thought I’d Never Run Again.
But with EDS and more, I ran a 10k.
May 9
34
2
3
My Top 5 Most-Read “What’s New in Science?” Posts — Ever
A look back at the research that has resonated most with this community so far
Apr 14
4
The Mistakes I’ve Made in My Chronic Illness Journey
Reflecting on the lessons I've learned
Feb 28
20
4
4
Evidence Matters. But So Do People.
Misinformation is everywhere. But how address it matters just as much as what we are correcting.
Jan 9
30
7
8
The Version of Me That Didn’t Make It
Sometimes I think about her
Dec 18, 2025
20
7
1
Small Businesses to Support This Holiday Season
Disability-inclusive, chronically ill–owned, and community-supporting gift ideas
Dec 8, 2025
7
2
1
What if I'm too sick to be a mom?
But what if...motherhood heals me? A brief reflection
Nov 18, 2025
15
3
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