This is the information that I need. I am a 52 year old female who has dealt with so many of these issues most of my life. The GI Dr. in Central GA who diagnosed me with hEDS and found my issues by ordering some of these tests is not currently available. I need a GI Dr. who understands this information to be part of my team. Any recommendations?
Courtney, could you please email me? I was part of the original hEDS study and I have some new information on my case that I think would be beneficial to you. adadroberts@gmail.com
Whoa! This is huge. It’s so cool to see guidance laid out so clearly like this. Like here’s the recommendations and a starting point. It’s helpful for the patients too cause honestly I’m looking at these clinical considerations for MCAS they mention, and now I’m like ok the ones I experience off this list are what I probably should start emphasizing.
Also this feels like a very good sign for my gastroenterology appointment tomorrow afternoon hahah🤞🏾🙏🏾 timing is unreal! It’ll be my first time this place but being able to name drop American Gastroenterological Association’s latest guidance if needed feels pretty sweet 😂
This is the information that I need. I am a 52 year old female who has dealt with so many of these issues most of my life. The GI Dr. in Central GA who diagnosed me with hEDS and found my issues by ordering some of these tests is not currently available. I need a GI Dr. who understands this information to be part of my team. Any recommendations?
Courtney, could you please email me? I was part of the original hEDS study and I have some new information on my case that I think would be beneficial to you. adadroberts@gmail.com
This is wonderful news!
Agreed! I got so excited reading it
Whoa! This is huge. It’s so cool to see guidance laid out so clearly like this. Like here’s the recommendations and a starting point. It’s helpful for the patients too cause honestly I’m looking at these clinical considerations for MCAS they mention, and now I’m like ok the ones I experience off this list are what I probably should start emphasizing.
Also this feels like a very good sign for my gastroenterology appointment tomorrow afternoon hahah🤞🏾🙏🏾 timing is unreal! It’ll be my first time this place but being able to name drop American Gastroenterological Association’s latest guidance if needed feels pretty sweet 😂