Cort, any word about the release date in Nature for your work? Just curious to see if my reverse engineering of phenotype to genotype fits with your findings? Im a Systems Thinking & Dynamics expert, I’ve approached the problem from the perspective - can we solve this with already known science? Can we explain the hEDS just by nosology? Critically can we make a computer model of it to try and predict the phenotypical variance?
Like you I’m a Scientist/patient and also ICU RN - but I was only diagnosed age 53 when COVID flared me (rolling flares ever since).
Has me by the balls now sadly!
I’m so relieved you younger scientists are taking this on - you are helping an enormous patient cohort 🙏🫶
Cort, any word about the release date in Nature for your work? Just curious to see if my reverse engineering of phenotype to genotype fits with your findings? Im a Systems Thinking & Dynamics expert, I’ve approached the problem from the perspective - can we solve this with already known science? Can we explain the hEDS just by nosology? Critically can we make a computer model of it to try and predict the phenotypical variance?
Like you I’m a Scientist/patient and also ICU RN - but I was only diagnosed age 53 when COVID flared me (rolling flares ever since).
Has me by the balls now sadly!
I’m so relieved you younger scientists are taking this on - you are helping an enormous patient cohort 🙏🫶