Your lived experience is what makes you ladies authentic. In a world where we are a poorly understood grouping of patients, authenticity is key. I do hope that patient scientist becomes as popular a phrase as citizen scientist. A notion which has been around for some years outside medicine.
It’s exactly why I created the App ConnectED (www.connectedhealth.au) - trying to take my lived experience and that as a scientist and ICU RN and create a bridge to diagnosis. I was 53 when diagnosed and disabled. I don’t want that for anyone else!
Your lived experience is what makes you ladies authentic. In a world where we are a poorly understood grouping of patients, authenticity is key. I do hope that patient scientist becomes as popular a phrase as citizen scientist. A notion which has been around for some years outside medicine.
It’s exactly why I created the App ConnectED (www.connectedhealth.au) - trying to take my lived experience and that as a scientist and ICU RN and create a bridge to diagnosis. I was 53 when diagnosed and disabled. I don’t want that for anyone else!